It's time to stop ignoring major patient groups

For a successful therapy, it’s important to find out the patients’ actual experiences when performing intermittent catheterization (IC). But a lack of research can provide obstacles. Have we heard directly from the patient about the difficulties they face when approaching IC?

A recent study seeks to remedy this neglect in research; it involved a total of 200 adults who had independently been performing IC for at least 6 months across the US.

 

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Topics: Urinary Tract Infection (UTI), Neurogenic bladder, Spinal Cord Injury (SCI), Parkinsons disease, Intermittent Catheterization, multiple sclerosis

Efficacy of TAI with Navina Smart

Emmanuel et al, PLoS One 2021. The use of transanal irrigation (TAI) with Navina™ Smart, is an effective and well tolerated treatment for bowel dysfunction.

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Topics: Bowel management, Transanal irrigation (TAI), Spinal Cord Injury (SCI), Neurogenic bowel, Bowel dysfunction, Fecal incontinence, constipation

Survey: Fear of infection among SCI injured during COVID-19

This is the first publication that assess the number one concern individuals with spinal cord injury or disorder (SCI/D) may have related to the COVID-19 pandemic. The data spans over six continents and describes the vulnerable situation for these individuals in the pandemic crisis.

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Topics: Spinal Cord Injury (SCI), @Coronavirus

Science Alert: Neurogenic lower urinary tract dysfunction from 3 perspectives - spinal cord injury, spina bifida, and multiple sclerosis.

One common reason behind lower urinary tract dysfunction is neurological damage secondary to spinal cord injury (SCI), spina bifida, or multiple sclerosis. Even though the everyday situation is different for people living with these conditions, they share many problems linked to their bladder.

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Topics: Neurogenic bladder, Spinal Cord Injury (SCI), Multiple Sklerose (MS)

Science Alert: Spinal Cord Injury – How common is it and what needs to be addressed?

Spinal cord injury (SCI) can be caused by either traumatic or non-traumatic events. The most common causes include road accidents, violence, and falls.

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Topics: Science Alert, Spinal Cord Injury (SCI)